Eight Years of Waiting

If you know epilepsy, you know what it feels like to wait.

Waiting for the next seizure.
Waiting for the meds to work.
Waiting for the EEG results.
Waiting for answers.
Waiting for your prayers to be answered.

For eight years, waiting became part of our story.

And then, on June 12, 2026, everything changed.

The Day We Dared to Hope

After eight years of waiting…

Silas has been seizure-free since June 12, 2026!

That was the day we handed our son over to his neurosurgeon to perform a right temporal lobe resection.

It was the scariest and most hopeful day of this entire journey with epilepsy.

We didn't know exactly what the future would hold.

But we knew this was the moment we had been waiting and praying for.

When It All Began

Silas was just two years old when he had his first seizure.

He would go stiff and zone out, becoming dazed and confused. Sometimes he would fidget with his hands or purse his lips. And afterward came the extreme lethargy.

The seizures weren't frequent during those first couple of years.

But whenever one appeared, it was a jarring reminder that epilepsy was still there.

Waiting quietly in the background.

When Waiting Wasn't Enough

When Silas entered kindergarten, everything changed.

His seizures became more frequent and soon became a daily battle.

We learned that he had a lesion on his right temporal lobe that was believed to be cortical dysplasia.

And so began years of trying to find the answer.

New medications. Increased doses. Side effects. Avoiding triggers. Adding medications. Stopping medications. Adding more medications.

And then there were the EEGs. The MRIs. The blood tests. The follow-up appointments.

Year after year, we kept searching for something that would work.

Hope in the Waiting

Through it all, we were waiting.

Waiting for something to work.
Waiting for answers.
Waiting for relief.

But I believed there was hope to be found in Silas's story.

I believed God had a plan.

I believed a miracle would come.

I just didn't know that the miracle I was praying for would eventually come through brain surgery.

The Answer We Had Been Waiting For

Silas was eight years old when surgery was first mentioned at an appointment with his neurologist.

And somehow, the waiting got even harder.

Once we started down the surgery path, there were neuropsychological evaluations, brain mapping, more EEGs, more MRIs, more appointments and more decisions.

We waited to find out if surgery could actually help him.

We waited to find out if he was even a surgical candidate.

The entire process took about a year.

Then, finally, we got the call.

Silas was a surgical candidate.

And a surgery date was set.

June 12, 2026

We entered the pre-op room with so much fear and so much hope.

We knew and believed that this was the moment we had been waiting and praying for.

And then we handed Silas to his neurosurgeon.

At that point, there was nothing more we could do.

So we trusted God with the outcome.

Silas's last seizure was the day before surgery.

More Than We Ever Expected

The surgery didn't just give us hope for a life without seizures.

It gave us answers.

The lesion we had believed was cortical dysplasia was actually something else, a rare, benign brain tumor called an MVNT.

After eight years of wondering what was happening inside his brain, we finally had an answer.

And Then We Started Seeing Him Change

It is wild to think about how far Silas has come in just a few short months since surgery.

He is seizure-free!

But what has amazed us most are the other changes we've noticed.

He is less overstimulated.

He handles disappointment better.

He can stay up late, manage busy days and simply roll with things that used to be really hard for him.

We've even seen so much more patience in him.

And yet, through all of these changes, he is still the same crazy, funny, silly, creative, curious Silas we know and love so much.

The Miracle We Were Praying For

After eight years of waiting, we are so incredibly grateful to watch Silas live life, and live life abundantly.

That is the miracle we had been praying for.

Maybe the answer didn't come the way we expected.

Maybe the waiting was longer than we ever wanted.

But looking back now, we can see that God was there through every seizure, every medication, every appointment, every unanswered question and every long season of waiting.

And somewhere along the way, we all learned how to wait well.

And now?

We get to watch Silas live.

And that is worth the wait.

~ Angie, Silas's Mom